Lupus can be difficult to diagnose for some patients. It is also possible that you have UCTD (undifferentiated connective tissue disease). Kind of a catch all phrase for "you have one or more AI diseases but we don't know which one(s).
How elevated is your cpk? Do you have muscle weakness? Problems getting up from chairs, climbing stairs, raising your hands over your head?
I have MCTD (mixed connective tissue disease) which is lupus, scleroderma and polymyositis. There are so many possible symptoms and diagnosing these connective tissue diseases with all their variants can be challenging.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it." Helen Keller