I have Fibro. It sucks. I have a lot of pain with fibro. It's a tough disorder to have along with lupus. The best thing to know is that fibro can't hurt you. It's purely a heightened pain disorder. Another thing to know, is if you take prednisone for your lupus, the prednisone can make the fibro worse. Fibro and prednisone don't like each other. Finding that balance that keeps your lupus quiet and your fibro quiet can be difficult. I have a hard time with it. If you're not on prednisone, halleluia!! Hehe.....
Having RA and fibro will likely give you additional pain issues. If you push or poke your upper arms, thighs, chest, ribs, shoulders, does it really hurt? Almost like a bruise feeling? If so, that's fibromyalgia. You'll also have more fatigue and brain fog to deal with. Unfortunately, lupus and fibro mimick each other really well. I sometimes have trouble knowing what is flaring. So knowing your body and being able to tell the signs of a flare early, will help you stay well.
I take 20mg of Amitriptyline to help me sleep. Sleep is an issue with fibro as well. If you're not sleeping well, it's probably the fibro.
Heat is very helpful in dealing with any pain. Nice warm baths are heaven! Fibro is a difficult disorder. I'm battling it really hard right now. It's in my feet. I can hardly walk the pain is so bad. This is a new place for my fibro to attack. I'm not very happy.... So keep in close contact with your rheumy. there is another medication called Lyrica that is supposed to be helpful for many people. I haven't tried it, but with this foot pain I have, I might!
Just know that fibro can not hurt you. It can make you mental trying to manage the pain and other symptoms, but it can't damage any organs or anything. I hope this helps Audrey. I'm always here if you have questions okay. (((gentle hugs)))
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus