Rheumy's in Virginia

Hi Beth!! Sorry you are so discouraged. *sighhhhh* Is your current rheumy do anything to treat your symptoms?? If not or if the treatment is not satisfactory, and he knows it . . . than I don't blame you for moving on. He should at least be treating your symptoms. Lots of us don't have a definitive dx . . . or we are dx'd and undx'd from time to time . . . but we still get treatment for our problems. There is a link at the end of my signature titled "Lupus Chapter Locater". If you click on that link and find your nearest Lupus Foundation Chapter, you can call, email or write to them and they will send or email a copy of Dr. referrals in your area. I would also suggest going to a local chapter support group, if there is one in your area, to talk to local members who can give you the good, the bad and the ugly about local doctors. Hopefully, some of the members here will have a tip for your area as well. If there is a long waiting list (often a couple months or more), make sure to ask to be put on the "cancellation list". Sometimes if they know you can take a last minute appointment when others cancel, you can get in much faster. Good luck finding a new rheumy!! Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08) Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator

Hi SJ,

I am in the same boat as Beth and would be interested in your doctor. My doctor is in Bethesda. I haven't gotten a diagnosis either and have been sick since Jan 07. My doctor is real nice, but I don't think she has a clue! At a minimum I have MCTD, but from my symptoms I think it's lupus and polymyositis.

Beth, I totally feel your pain and frustration.

Yes Sj . . . we can post Dr. names with positive comments . . . but not with negative comments. Thanks for sharing! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08) Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator

Hat, MCTD is not a vague dx. It is mixed connective tissue disease which indicates overlapping features of three different connective tissue diseases. This usually indicates Lupus, Polymyositis and Scleroderma UCTD is Undifferentiated Connective Tissue Disease. Usually means that "the characteristic features that are used to define the classic connective tissue diseases are not present, but that some symptoms or signs of a connective tissue disease exist." Here is a link that briefly explains the two: http://www.medicinenet.com/script /main/art.asp?articlekey=16955 The bigger question is: Is your doctor TREATING your symptoms?? Make sure to check the info in "Lupus Resources" . . . the link is in my signature. The link above is included in that topic as well. I hope this helps. Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08) Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator

Hi Beth,

I changed Drs. in the same clinic because I wasn't happy with the care I had been getting and I would like to have all my records turned over to the new Dr. after all they work for us and our money LOL.
Good luck , Linda

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Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survior.

 Linda