((((((((( Lurker ))))))))))))
OH NO! I'm so sorry your precious babes are dealing with pain at such a young age.
You are NOT wrong. You are mothering your babies!! Yes! keep searching for answers.
If you are near an outstanding hospital like Rainbow Babies and Children's or Cleveland Clinic, Mayo, etc. they may have a greater interest in figuring things out. A pediatric rheumatologist might be a good start.
Have the doctors checked blood work for ANA ??
There are some really young Lupus patients, unfortunately. There was a mom hear a few weeks back with a very young child who had been dx'd with lupus.
If you can travel to get to a good facility, and get a diagnoses (whatever it is) then your local doctors will take it more seriously and treat it. They may be totally unaware of the possibility of lupus in an infant or a young child. Alternatively, they may be watching very closely and not wanting to alarm you. Sometimes they KNOW what it is and they wait until there is some treatment needed. I think they should TELL us everything and let US decide when to worry.
There are strange rashes with lupus too. Also, there is another arthritis called Psoriatic Arthritis, but I don't know much about
it or if children can be affected.
So sorry you are dealing with all of this instead of just being able to enjoy your little ones.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator