I'm sorry that your children are suffering so much. My 17yr old daughter has been sick for the last 2 years and we were lucky enough to be referred to an immunologist who ran the 'right' tests. She has been diagnosed with Sjogren's but he is still hesitant to confirm SLE (but deep down I feel it is)
He also advised that we look at food intolerances, my husband has a food intolerance problem - if you are sensitive to this you can have reactions to normal things like fruit and vegies as well as the more common milk, wheat etc. I was wondering if you had looked into that. You said that your children's symptoms started at about
13 mths of age and that is usually when their diets are changing quite dramatically.
They have a lot of information on the subject and some helpful hints. We have changed many things in my families diet and it does help.
Most of all good luck, I know it is so worrying when your children are unwell.
Best wishes from Sydney, Australia.
Post edited to remove link
Post Edited By Moderator (AlwaysRosie) : 7/18/2008 8:48:50 PM (GMT-6)