I dont know how to send just you a message on here?
"right combination of meds really does take some trial and error. Don't give up!! You'll get it. Most of us do not press for a definitive diagnosis. . . .we care more about treating the symptoms. Lots of docs are very hesitant to label the disease if they aren't absolutely positive and they are doing you a HUGE favor by NOT getting the L word into your medical records. "
I copied this because I was interested in what you meant exactly? Why is it such a bad thing to have this Dx in a medical record?