Feeling better each day

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Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 7/17/2008 12:18 PM (GMT -6)   
Hi Everyone.  I just wanted to tell all of you how much I loved the support you have given me these past few weeks. As my subject says, things are improving. I have over $600 out of my pocket that I must pay for all the tests done in June, but I know that I'm still doing better financially than many of you. I still need to catch up on my HW mail, but it's obvious many of you are hurting for $, which I'm sorry to hear. Oh, just FYI one of the best docs I saw was an oral pathologist who specializes in mouth diseases, ulcers, etc. I've been plagued with tongue ulcers and thrush, both painful. She prescribed a swish and spit dexamethazone that cured my ulcers within days. Those of you with ulcers may want to consider it. That's it for now. Love, Butterflake 
Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, wellbutrin, seroquel, xanax, ambien, celebrex, neurontin, lyrica, arthritis tylenol, promethazine, actonel, multi vit, C, flaxseed oil, acupuncture

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 7/17/2008 12:25 PM (GMT -6)   

Yay yeah yeah yeah yeah yeah yeah !!!!!

I'm so glad to hear that things are starting to improve for you.  It really stinks how much all of this medical stuff costs though.  I have a magic mouthwash but I don't think it's the same as yours, so I'll have to write down the name of yours if I need something in the future.

Keep taking it easy and I hope you keep feeling better and better.  (((((Hugs))))) 

Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 7/17/2008 1:08 PM (GMT -6)   

YEAH!!! Every bit of progress is so encouraging to everyone here!! Thanks for the update.

Hoping you continue to make good improvement!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 7/17/2008 10:27 PM (GMT -6)   
Wonderful, Donna! I hope you keep on getting better and better!

Love ya!
Audrey Ann
Lupus, RA, and (Maybe) Fibromyalgia and LOTS of Medications!


Regular Member

Date Joined Mar 2008
Total Posts : 60
   Posted 7/18/2008 8:03 AM (GMT -6)   
I haven't been here in the past few weeks, so I don't know specifically what you were dealing with, but it is always good to hear a good report. I'm so glad things are going better for you. :)

It sure does get expensive. I'm really thankful to have insurance that pays 100% for all the diagnostic tests; otherwise, I don't know how in the world I'd ever be able to pay for it.
~ Bee

God is the strength of my heart! - Psalm 73:26

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 7/18/2008 10:10 AM (GMT -6)   
Great news Donna, I hope you continue to feel better each and every day! Take care and update us now and then on how you are doing.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed) and magic mouthwash (for mouth sores)

Regular Member

Date Joined May 2003
Total Posts : 56
   Posted 7/18/2008 10:41 AM (GMT -6)   
I'm so happy to hear you are feeling better. The price of all these tests and meds and supplements can really add up, but it sounds like it is paying off for you. I"m glad to hear about your oral pathologist's treatment (I've never even heard of an oral pathologist). I'm taking note of that Rx too.

How are you coping with being off work? Is it a relief? It will enable you to take better care of yourself . . . and spend more time with us on the Forum!!! I'm glad things are improving for you. Please keep us updated.
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