Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
I am new to this forum, but certainly not new to Lupus (SLE). If I were you I would definitely find a different doctor and fast. I have had 9 of the symptoms listed in the criteria for Lupus and several of the blood tests indicating Lupus and Sjogrens. I have been on medications for Lupus now for 14 years. I literally went for 35 years with Lupus symptoms before it got totally out of hand and nearly killed me before I finally got diagnosed. Lupus is a serious illness and it is very hard to diagnose. It can develope insiduously as was the case with me and then boom you get a virus and it can go full blown. That is what happened to me. I did not have a positive ANA or anything until I got a case of the Chickenpox at the age of 35. That is when my health went right down hill big time. I am very lucky to have gotten diagnosed when I did or I most likely would not be here today. I will be 50 in December. Good luck and I hope that you find a good Rheumatologist that will listen to you and help you figure out what is happening with you.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
I wanted to welcome you to the forum too, and to tell you that I have those blotchy areas on my upper arms, but it seemed related to the sun to me.
And I have the sun sensitivity that you talk about and it does seem to be worse in early spring through late summer. And after a day of being exposed to the sun, I get sick like I have the flu, every time.
Now it seems to be getting worse. Less exposure to the sun is required to make me sick, and sometimes the flu symptoms arrive the same day I am in the sun. And sometimes it is like the sun is just draining all my energy from me. Told my kids I must be part vampire
Hopefully you will get some answers when you have your blood tests done