Barb. you must be psychic because I was just out here wondering how you were because I hadn't heard from you. If you have the energy, I think a second opinon would be good. I wish travel wasn't so hard on you. I would say Moffitt in Tampa and Mayo Jacksonville. You are sleeping alot. Are they sure you don't have an infection? the pain drugs mask alot of infection symptoms. When you get a second wind, maybe you can bug them about this. when I had that kidney infection for like a year, I got to the point I couldn't stay awake. Finally, when I couldn't walk to the toilet myself, the ER decided to give me the nasty "STD" dosing of "kill everything" antibiotics, and it helped.
I've been looking at what the government is spending the money they allocated for autoimmune disease on, what research they are doing. If you can't sleep, you might read that post, it will help.;) I'm sorry I missed you at Atlanta, I wanted so much to meet you but I was feeling sick and it's a good thing I didn't go because I wouldn't have wanted to get anyone sick.
I wish we could blink our eyes and have our problems solved, like Genie. All I can do is send lots of love and (((((hugs))))) and good things and prayers your way.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn