Hello CA Woman,
Welcome to the forum. I'm so sorry you are having such a hard time. Part of your post really rang true for me as well.
\I am usually teh strong person tghat people come to and I am teh fun person always ready with a joke and a smile abut I feel it is almost like a big act. I sholuld get an oscar. . . .
I hate feeling sorry for myself. Even reading the entries on this forum I know I am very fortunate. None of my organs are damaged. It is just the day in day out pain that is really getting to me. . . .
We really do go thru times when we should be awarded an Oscar. I'm playing that part right now too. I feel like each new symptom and dx and limitation requires some new adjustments in my thinking. I've recently felt like I'm getting painted into a smaller and smaller box. But . . . I'm like you as far as healthy organs . . so I also feel bad for feeling bad . . . if that makes sense.
Anyway, I've found that there is simply an adjustment period to learn how to cope with the new pain or the new issues. And once I get the inside of my smaller "box" decorated, I'm feel more in control again and happier.
There is a topic called "bridges". I'll bump it up for you so it will be on the first page again. Really helpful. Just a short little paragraph by one of our members, Mom46 (Babs).
I'm 55. But I've never heard someone say that everyone they know who has lupus is older!! Lots of the members here are VERY young. I was actually told, initially, that I was "too old to have lupus".
Glad you found us!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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