Posted 7/20/2008 11:31 PM (GMT -6)
Hello all - hope you can help me figure out whether what I experienced this week was a lupus flare or something totally not autoimmune in nature. I've been seeing a rheumie for 1 1/2 yrs. She keeps testing me for everything autoimmune every 6 mos. The only consistency is a positive ANA - which keeps going up. Last one in May was 1:1280. After trying to ignore some impending flare signs, I awoke the next morning with fever, wicked h/a and pretty severe joint/muscle pain. I hurt in places that hadn't bothered me for awhile. Took Advil for fever and pain. It barely took the edge off. Lots of fatigue and spaciness, but I also hadn't been sleeping well. I have fibro and CFS as well, so pain, fatigue and spaciness are not strangers - but the fever (102.6 at the highest) and weird headache (around the eyes & eye muscles- with little head rushes if I moved too fast) were specifically not the norm.
I came down w/ a big nasty virus in 1997 - never really dx'd beyond EBV and CMV. Fever for 3 weeks - rash, fatigue, jaundice/hepatitis, muscle weakness, joint pain, weight loss, etc. It started with a high fever (104) and the worst headache of my life - also w/ specifically painful eye muscles. I had to quit my job and was never quite the same - the convalescence leading into the fibro and then CFS. Had a recurrence in 2005 of a similar but milder version - only lasted a week - but same hallmarks of fever, headache and joint pain. It seems to me this is what happened again last week. No other symptoms usually assoc. w/ a viral infection....no sore throat, congestion, cough, diarrhea, etc. The fever was gone after 4 days, with all symptoms reducing in intensity after 2-3 days.
GP ran West Nile, and metabolic panels. So far, liver enzymes were pretty high, CRP through the roof, incr. white cell count and positive ANA, but lower than in May. Still waiting on hepatitis and West nile results. Does this sound like a typical lupus flare? The rheumie suspects lupus, but blood doesn't confirm it. I don't have malar rash. Thanks for listening.....can't seem to find info on flare symptoms....maybe they are all different?