Thank you for posting your message. I think it rings true to just about everyone here. I started having health problems when I was in my early teens. It took until I was 26 to get my diagnosis. I've also had a couple of near death experiences because of a lack of doctor's attention. It is very sad. I cry about it often. It's so good to know that we're not alone. We have each other to talk to. On the flip side of that, I wouldn't wish this disease upon anyone - so I wish there wasn't anybody who had to live the way I do.
you are absolutely right. You must have a backbone and be very knowledgeable when talking to doctors. I have to do that with my rheumy next month. She won't pursue a diagnosis of Ankylosing Spondylitis, but I have every single red flag of the disease, except that dang positive antibody. I have to get tough with her.
I'm glad you're here. Looking forward to getting to know you better,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus