Judy, I just finished your book! It was the best afternoon I've given myself in ages. You have a terrific knack at story telling. I was laughing out loud reading about your hospital admissions.... Especially the story about "Betty" and "Bob". And your ECG test. Too funny!
I spent the first chapter in tears. So much of what you said applies to how I feel every day. So much of it. I used a highlighter to mark places that really hit me. I'd say 80% of the first chapter is neon yellow. I don't feel so alone. I know my feelings and emotions are the same as other people with lupus. I felt when I was reading that chapter that it was a biography of me! So many times I've tried to explain to other people and even myself, what I was feeling and couldn't come up with the words. But you did.
I'm turning a new leaf today Judy. I'm trusting God to look after me in his most perfect way. I'm also not going to try to be such an achiever. I don't need to prove anything to anyone. I need to look after myself and slow down..... So that I can continue to live and experience the beauty.
Thank you Judy. God bless you,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus