Posted 7/30/2008 3:10 PM (GMT -6)
I saw the Mayo ortho who was ready to suggest some limited surgery on my lower back, but surprised him by being out of the walker, standing up straight and in a much better mood! I explained to him the TB tx drug had helped me so much. Then he replied "you know you can get that in your spine" and I asked for a spinal tap. He said he couldn't order it and the Mayo infectious disease guy is gone and had previously flat out refused to do it. The ortho felt that due to the incredible results I had it might be warranted and the doc might change his mind. I had scheduled with a female infectious disease doc at home who seemed to be very caring, but she also seemed reluctant to do any diagnosing. She didn't see me when I was really sick though. I'm really tired, disheartened, and frustrated. Its like the gold ring is there but I just can't get it. She feels that since the isoniazid is working well, I should just go with that, but without knowing the scope or type of the infection for sure, it may not go away. I don't know why docs deny these diagnostic tests to their patients, when they would more easily give out serious drugs. It's just frustrating. I am feeling so much better with the infections going away or gone in some cases. I wonder how much of my ill feeling really came from any autoimmune disease and how much came from infections brewing that just weren't going away. Sorry to vent. I just feel ready to collapse back into hopelessness. The walker sits in a corner of my room, reminding me of where I was before I started the TB treatment. Also, I've been coughing, but she wouldn't test sputum, offered chest xray instead, which is not definitive. I wear a mask now and avoid everyone. My eyes are even better and gold rings in iris gone!
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn