I've always known I had Reynaud's - both my mother and maternal grandfather have it - but last year I started with symptoms of low grade fever, fatigue, joint and msucle pain, headaches, brain fog, loss of words, and other various bits and pieces. At first pcp and I thought Lyme (I'm in a high risk area), but that came back negative. However, my ANA was really high (not sure what that initial result was). My pcp didn't seem concerned and said to wait it out until my symptoms got really bad, then do something. (eek) Then I went to my midwife for a yearly check up, mentioned the high ANA and she was horrified that I had been referred to a rheumi. So I started going to someone in October of last year. I don't have copies of my tests but I do know that my ANA is consistantly 1:1280. My symptoms aren't awful. I don't feel terrible, I just don't feel good. And it seems to be worse at this time of year. I'm not sure whether that's because the heat makes it flare a bit, or because it's the summer. I'm a Montessori middle school teacher so I work about 800 hours and I don't let myself get sick. I also have a beautiful, shining 2 year old who keeps me busy in the best possible way!
My rh. hasn't given me a firm diagnosis of lupus, though she believes that's what it wil be. I defeinitely have the Reynauds and recently was diagnosed with vitiligo (loss of pigmentation). I'm really really hoping the vitiligo doesn't spread. At the moment it's just the insides of my elbows, which I can deal with, but the vain part of me would rather it stick to that! I am on plaquinil (400mg/day) and a multivitamin. I'm in therapy, doing yoga, taking my vitamins, starting with a naturopath in two weeks and will have new blood tests done in a week or so (obviously, I"m also sticking with my rheumatologist).
So there I am in a nutshell. I'm looking forward to learning more and keeping this under control!
*please forgive any spelling issues, typing with a 2 year old on my lap!*