Posted 8/7/2008 2:39 PM (GMT -6)
I have had endometriosis,some of the most severe my docs had ever seen. It also invaded my insides and I probably have more residual tissue, though much was removed in the two laparoscopies following the hysterectomy. With endometriosis, I also developed polycystic ovary and both conditions are very painful. I also have irritable bowel, so all three would flare up at once and things would be terrible. It's important to get this stuff under control because it can get worse and worse. I recently had a common pelvic infection get out of control and I could hardly walk just from that. Since our immune systems are compromised, we just don't seem to fight this stuff well, and there is some documentation that certain infections, in my case TB, cause endometriosis, which is an autoimmune response, but underneath, there may be a cause that is infection related and needs to be treated because it will just get worse. A lot of research now is looking past autoimmunity for underlying causes, sometimes they are unresolved and resistant low grade infections we are constantly fighting. I think there will be real progress on this front.
I hope they figure it out. During the worst months on interferon, I would hemmorhage, but most people don't have it that bad. They would have done an emergency hystero, but my liver was so bad they could not give me anaesthesia. I was on a morphine like nasal spray for pain and totally sedated! PCOS developed soon after the first severe appearance of endometriosis, then eventually bad pap smears, so the whole mess got taken out when my liver got better and I got off interferon and I use a estragen patch and feel much better.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn