Posted 8/7/2008 2:27 PM (GMT -6)
I got one when I was thirty-five, eight years ago, but I had been suffering for years with severe endometriosis, polycystic ovary, and then finally questionable pap smears. Every two weeks, sometimes once a week, I would begin bleeding badly and usually ended up having to go to the ER for pain and bleeding. Then I would go with no periods for a month or two but feel awful and be bloated and have ovary pain.
I definitely felt much better after my hystero and getting on hormone replacement. I felt like a child again having a constant steady dose through a estrogen patch, like I did before I hit puberty, no ups and downs. My mental state improved and of course the pain and bleeding was taken care of.
My ANA is elevated all the time, though it does go higher and lower as does my CRP. The ups and downs occur after having a hysterectomy while on replacement therapy, which I wouldn't do without due to problems with brain cell degeneration and osteoporosis. Actually, I think mentally my mind was really bad from not getting estrogen, and when I got it, I felt much better. So if your ovaries don't work, you can feel pretty bad, though I felt that way all the time, the hassle of the severe bleeding and the rest definitely made things seem worse.
What was nice about my full hystero was that they could do accurate hormone replacement. Sometimes they leave the ovaries, but they areen't working to provide enough estrogen anyway and then become polycystic or whatever and they have to go in later and take them.
I would say the biggest factor I felt was not an increase or decrease in autoimmune episodes as much as total brain fog due to lack of estrogen, and sluggishness vs. more energy and better brain function once I got on replacement therapy estrogen patch. I don't like the pills because they cause a daily up and down. My doc explained that for an estrogen pill to work all day, it has to deliver eight times the recommended dose when you first take it and it normalizes toward the middle of the day and then for the last half of the day you are getting less and less. So every day you have ups and downs vs. a patch which delivers a constant steady dose. I can't take the pills.
Anyway, I think there are a lot of factors about why it would or wouldn't make things worse. One doc tried to tell me that women felt more pain because of periods and I told him he was nuts, if anything, we learn to cope with pain better than men. Healthy men just downright don't get as much pain normally as healthy women do. The guy was a real hack. I don't like docs that have a "gender" agenda, since it usually ends up with the female patient not getting adequate and compassionate treatment and can be a form of discrimination. I'm not saying your doc is going there, but you need to be aware that the converstation can open the door to comments and tx that you may not like. You just have to trust your doc to talk about this stuff.
I'm sorry I couldn't answer you better. Best of luck, Jenny.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn