Way before we even knew the word "Lupus" . . . we usually brought along my "throne". LOL . . .it was a great lawn chair that rocked or the folding chaise lounge, depending on how I was feeling.
I still bring at lease my own comfy chair and a folding foot stool so I can sit and get my legs up.
If your hubby is with you, you could find a good spot and rest while hubby and the kids go off and do some of their activities. They leave all their junk with me so they don't have to carry the backpacks and all. We do a form of pacing where I'm resting during the hottest and most active part of the adventure.
Example: If we went to the Zoo . . . I would park myself in one of the indoor exhibits for a good while. Its amazing how much longer I last if I take frequent breaks AND stay out of the sun. I also always carry and use a golf umbrella.
I'm SO sorry you are stuck with this blasted situation of making such hard choices with the kids.
We even did our vacationing close to home and usually no more than 2 or 3 days. I just couldn't manage the trip AND the fun. So if we eliminated the long drives, we had more fun.
*sighhhhhhhh* I'm so sorry sis. I know this is hard.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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