Sorry to hear about
your fun being cut short. The sun is especially bad this year I think. Maybe the air in Beijing has something to do with it? So we give them our factories so they can pollute shamelessly. Ugh. I'm so disgusted. I'm so sick of free trade being used to skirt environmental standards. I've been doing everything at night. Maybe you can do things at night. The rides are often more fun for the kids when they are lit up. And during the day, you can go for as long as you can stand, and then take off and have hubby or another family member or someone stay with them during the day for those few hours?
I know it's impossible. The sun comes up and we want to do things. But I step outside and I swear smoke comes off my skin and it sizzles. I feel like a vampire. They make a personall cooler thing that is like an ice pack around your neck. Those things help some. I have a little fan too. At the fairs I've been to, there is an inside part with food where you can sit and I hang out there when I get tired and I have a rolling walker now which helps because I can sit on it when my legs get bad. And I can rest my purse on it when I'm walking.
I hope things get better for you, but I think it's the plaquenil mainly for me. It's just made me very sun sensitive.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn