Thanks kaymac and ginny,
Ginny, you had me LOL in your first paragraph. It's so true. I'm so sick of tests and everything, especially painful one. A psychopath couldn't have done a better job with my EMG it hurt so much and went on so long, two hours of needles all over deep in my shoulder, deep muscle tests. I had tears in my eyes OUCH. And the doc just acted like it was no big deal what he was doing to me. I wondered if he ever did it to himself. Oh, and he let the student/junior neurologist do it first, then he came in to really dig down to the bone. Sadist. But then I'm used to pain now and numb in the rest of the places. ;)
Kaymac, I hope you find answers. It's so weird. The docs don't seem surprised and have all these treatments to relieve symptoms but ask why you have it and what causes it and it's another story. They just see these patterns in our ailments and treat them, but if only they could figure out why. What puzzles me is how severe it is when you have it, and then how it moves. How bizarre.
Well, I hope we have some kind of breakthrough and this stuff goes away. Hopefully, they will discover something soon. The government is really backing good research. I think there may be a variety of reasons why we all have problems that lead us to the same place. I don't think one therapy will work, and just calling it autoimmunity isn't real helpful to us without finding out how we got this way and how to fix it. Maybe someday.
I'm so so sorry you guys have it too.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn