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Regular Member

Date Joined Apr 2006
Total Posts : 41
   Posted Today 5:35 PM (GMT -6)   
Hi all!

I have been so so busy for the last year +, I haven't even had time to keep up with you all. Really really busy isn't typically good news for those of us with autoimmune disease, and I'm paying the price!

Since last summer, I've changed jobs to a more demanding one that has resulted in insane work hours. I started, and dropped out, of grad school (when I realized what I was doing to myself). I started, and refuse to drop, my own business designing/selling knitware/accessories. I'm now officially diagnosed with high blood pressure and cholesterol (dang), and then I can't figure out why I can't sleep as my joints and chest scream at me while my hair thins like mad and I'm heartbroken over ugly lesions on my face and scalp. :(

Worse! I've avoided seeing my doctors this year. I knew what the verdict would be (too much stress, too much work, etc.), and thought I just had to get through "just this month" then I can go and then I can cut back. 12 months later, I see there is no "just this month" and the time is now, let alone a year ago. I really beat myself up for not being able to do more -- do others do that to themselves too?

So, new leaf, got my blood drawn yesterday (though I see online that my lupus titers weren't drawn ARGH). Making MD appointments today. And carving out "me time," which might be sitting and doing nothing as I listen to birds in my yard and pet kitties on my lap, or might be taking a leisurely walk, or might be napping, etc. I'm really going to try, anyway!

I'm a little worried about what labs, once the right ones are drawn, will show. I'm so used to hearing that it's all in my head though, so they might not show a thing. ;)

Hope everyone's doing well during sunny Summer. Fall will be here before you know it, then we'll all be more comfortable -- I hope!

SLE diagnosed 1992
Peripheral Neuropathy diagnosed 2002/2003
Type II Diabetes diagnosed 2006
Meds: plaquenil, neurontin, relafen, nortryptiline

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted Today 10:03 PM (GMT -6)   
Oh Brenda, bless your heart! That sounds absolutely terrible. I really do understand the frustration and the wanting to be in denial. Plus being around others who like to deny that you are ill and saying it's all in your head doesn't make it any easier. I'm so glad you finally got the courage to take a look at what is going on with you and realizing you need help. You really need these tests done. All of them. I can't beleive they didn't do an ANA after this long. I wouldn't be surprised if you have a high sed rate. Hey your are on the right track though. One step at a time. I havn't been to the doctor in 3 months and that's a long time for me. Let us know how the test go and tell them you want all the test done not just half of them. and than come here and share with us. You need some possitive reinforcment.Hang in there
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
I will never leave you nor forsake you!

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