So angry

Oh Carol,

 

You're not in a good situation, sis.  I'm concerned for you.  I'd be very angry about that kind of treatment and comments too.  This isn't healthy.  Where can you go?  Any other family, or friends nearby?  I wish I could help you.

 

Please keep us posted on how you're doing, okay?  I hope the fog and rain lifts and you start feeling better.

 

Lots of love

Ginny

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I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Thanks Ginny and Patty, I appreciate the support. I spent an hour on the phone with Barb crying my eyes out.Thanks again Barb!
My case worker came over today and asked me how I was doing so I told her. All she could sugest at this point is to take my meds from my sister in law and have a nurse come once a week to put my meds in a case for me. Just to stop the fighting between us. 100.00 bucks to have some one fill my pills once a week. 400 a month to fill a pill box! I need a job like that. She also told me that she takes care of people who take twice as many pain pills that are only half as bad a shape as I am in so
it's rediculous to be treated like I am. Unfortunately I am stuck here until I can afford to move. I've got one more big bill to pay next month and then the rest is all easy ones. You're right patty. They give me means on wheels every day so other than cokes I'll live on that and pay my bills so I can gt out of here faster.
My case worker is very concerned about my health. I told her I was trying to get off the xanax and she told me not to even think about it.
anyway thanks for listening to my rant. and thanks for your support.
love ya
carol

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Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis

Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 

I will never leave you nor forsake you!

 

(((( Carol )))) you do not deserve to be treated like that, I will be praying that you can get out of there soon. Hang in there sis, hugs and love

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Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)

I have relitives very similar...I have had to cut them off/no communication!

Hey Carol

Family members can be very insensitive.  I will pray that soon you will be able to get out of this situation.  It is definitely not good for you to be there.  It is bad enough that we question ourselves, much less an arm chair doctor advice from your relatives.

Sometimes I wonder if family treats us this way sometimes, because they are in denial.  Denying your illness might be easier for them to deal with.  Maybe others in our family prefer denial rather than admitting you are really sick.

My best to you

hester

Hey Carol,

this woman, your mother-in-law, is overstepping her boundaries and limitations.  But living her house makes it difficult for you to be assertive, and your right to respect of you

The Cherokee, my people, only used a sweat lodge when a person was sick.  The Lakota people do use sweat lodge for spiritual ceremonies and guidance.  I have never used a sweat lodge myself.  I have talked to a couple of my friends who are Lakota, and some interesting things happen during sweats.  Maybe one day I will get to do this myself.

I was thinking of your steroids earlier.  While I lay on the bed trying to recover from the night.  up all night with Diarhea.  do not know how to spell that word.  I used to take prednisone before.  maybe I will ask my doctor for this medicine if it will give me the energy needed to clean my house.

It is terrible what you are going through, and I will continue to send my prayers your way.

Hester

 

 

 

 

Hi Serina, thanks hun. yeah I think it's easier to just live in their fantasy world. Here I have home health care 15 hours a week. nursing care, a case worker that stops in, meals on wheels for when I can't cook. She even looked at my computer for what she could delete and said do you want me to delete this lupus group? I really do appreciate them praying for me. I beleive in maricles but to be told when I'm sick I should get up and move around do stuff. It will help me get better faster. Oh if that was only true.Oh well I'm trying to get over this, maybe it's the steroids that are really keeping me fired up. I was gonna ask you if you had ever done a sweat lodge?