Hester, this is a great topic to start. I think we all have degrees of PTSD with this disease. I've had some councelling very recently actually in regards to this. I wasn't diagnosed with PTSD, but my feelings and emotions were validated and the councellor really thought that my emotions were totally normal for someone who has gone through so much turmoil in one decade. He thought I was quite healthy in the brain actually, LOL! Surprise, surprise!!
I have flashbacks and episodes of complete meltdown bawling some days. It all stems from a near death experience with a seizure medication last summer. To be honest, I don't think I'm dealing with the past very well. Which made me believe I had PTSD.
I think PTSD could very well be more than a trauma. Could it be the lupus causing our brains to "malfunction"? I don't know. It will be interesting to hear what others think about this.
I hope your day is good to you too!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus