Hi, I'm new here. I have a list of symptoms about a mile long and no doctor seems to understand. It's almost as if they aren't really listening to me. I'm even begining to think maybe I'm just crazy. Whenever I try to research my symptoms online, Lupus is the thing that almost always comes up. I don't want to have it, but I fear that I do and that I will wait another eternity for a diagnosis and some help. I've been through ten-zillion blood tests and several hospital outpatient proceedures where they've been poking around and keep finding nothing. I believe that whatever I have began about 12 to 15 years ago.
Where did most of you go to get your diagnosis? A rheumatologist?
My doc did an ANA test on me and said I came back with "39." What does that mean? She said it was a "normal" number, but taken with my other symptoms I'd think it would be something to look at more closely.
List of symptoms (in case you have lots and lots of reading time on your hands)
Most often, I have some of these symptoms in cycles with some overlapping and then I cycle to another set. Right now I have ALL of them going strong at the same time:
Inflammation in left eyeball with grit and fiber coming out
Burning tongue with red and/or white patches and sometimes swelling and cuts that come from nowhere (it's gross)
Calves that become rock hard and crampy
Constant muscle pulls and sprains from little or even no movement
Chronic back, shoulder, hip, neck pain
Unrefreshing sleep, and sometimes insomnia and trouble falling asleep in the first place
Abdominal pain - especially on the upper right side
Frequent Nausea and sometimes vomiting
Chronic sinus infections and sore throat
Inflammation of groin area
Swollen legs, feet, hands
Intolerant of cold
General joint and muscle aches and pains that jump around
Body temp always "off"
I could still go on and on...
I didn't come here to whine, but I'm confused and I don't know what to do next. Basically my GP told me to "wait until it gets bad enough" for him to figure it all out. I assume that when I'm dead he'll have an inkling, maybe.