Posted 8/26/2008 4:46 PM (GMT -6)
You will have to adjust to a new normal with less energy. Set aside those things that are not important or necessary to do. Make sure you get enough rest.
Life with lupus means less energy and you don't want to work yourself into a flare. There are always things we do because we want to do them...not that we have to do them. Those patients with young children and still trying to hold down jobs have a really difficult task. Just adjust as best you can.
I have a friend who also has lupus and she finally decided to take a less stressful and more flexible job. It was a joint decision with her husband and both have benefitted by it. They don't have any children either.
Hope you can make the adjustment. Just make sure you talk to your husband about it. I am sure others who are younger and have kids and still work will chime it.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it." Helen Keller