I was thinking as I sit in the school parking lot waiting for my grandchildren to get out, that I do not know how in the world people do it who have young children. I did it before myself, but was not as sun sensitive as I am now. After the school pickups, I drug myself back home, could not wait to get inside to lay down. If I had small children to care for, I do not know what I would do or could do. So I admire all of you who have small children and find a way to manage this disease, and others, and still take care of thier children.
Hope that soon things will be better for you