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New Member

Date Joined Jun 2008
Total Posts : 14
   Posted 8/27/2008 10:26 PM (GMT -6)   
   Hey all............Just a quick note.....sending everyone a "Hope your feeling well wish"......Just had a kidney removed and a mild heart attack during the procedure..been away for a while now.......not realising how much encouragement I get from this forum until I was unable to access it while in hospital....Just wanted everyone here to understand how lucky we all are to have this forum, and others who know what we are going through........even if they don't understand one or two of our symptoms........we all know how hard Lupus is to deal with and just how unpredictable it can we support each other as though we are family..........and wow......It means so much more then I ever still will NEVER know what tomorrow brings with Lupas...........Learning just how important it is to take my meds........listen to doctors..........I encourage others.............speak in here............ask questions......and if you aren't sure..........ask again.........Life is to short to go through it without knowing......Keep asking questions........its the only way you will ever know..and even at may NEVER know............but will do your best to take care of yourself with the information you learn from others here who have the same future as you do.......... And you will always have friends here who understand, care.......and will always matter how silly others may think it is.........Us LUPIES NEVER feel any symptom or emotion is insignificant and will do our best to help.....and if we havn't the knowledge the least we can do is suppost you emotionally until you are through the problem you are having.
   Really want to thank everyone here for getting me to this point.........without the support from here.......and the feeling of belonging I am not sure how well I would have coped with everything I just went through..............Thanks to all....... and Please..........ask questions..and more questions...........vent.....and feel better.......we all need a place like this.
 Take care

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 8/28/2008 8:01 AM (GMT -6)   
What a beautiful and inspiring post you wrote, Cheeki. It's one that I'll refer back to when I'm feeling down. Thanks for sharing such wonderful thoughts.

But boy, you have gone through a lot. How are you feeling? Are you up and around yet? I pray that you have plenty of help and support at home and that you have plenty of time off work. I see that you are a nurse and hopefully that means that those at your workplace will understand your situation.

Everything you said about asking questions really hit home with me. That should be our motto. And yes, this forum is a special place full of special people. Welcome back. Hope you'll feel better now. Let us know how you're doing!

I'm sending you a great big imaginary bouquet of flowers.


Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined Aug 2008
Total Posts : 56
   Posted 8/28/2008 9:02 AM (GMT -6)   

Im glad to see you are now able to access the forum. I have only been here a few days and finally feel like someone else understands! Take care and hope you are good as new as soon as possible!

31 year old mom of 1: SLE, UCTD, FM, Arthritis, Reynalds(?), Migraines, Alopecia, Neuropothy(L:Hand & Foot), Int. Bells Palsey, Costrocondritis(?), a bunch of other stuff I don't remember right now and even more labwork I dont understand! Patient at Johns Hopkins in Baltimore, MD.
 Plaquinil, Trazodone, Lidoderm, Percocet for now...I hate taking the meds!  Refusing any more Prednisone!

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/28/2008 10:10 AM (GMT -6)   
((((Cheeki)))) Your post was just beautiful and you described so well how I feel about this forum and the people here. I don't know where I would be without all of you.

You have really been through a lot lately and I hope you are getting the time to recover. How are you feeling now? The operation and the heart attack sounds scary. Please keep us updated when you are feeling up to it and make sure to take good care of yourself.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 8/28/2008 8:10 PM (GMT -6)   
(((( Cheeki )))) welcome back! Bless your heart, you've been through a lot. I pray you are feeling better now. Your words are so true and I am glad you posted your message. I am like the others, I don't know what I would have done without all of you, this forum has been a God send. Take good care of yourself and keep us updated on how you are doing.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's, Celiac Disease, Raynaud's, Lupus and Sjogrens
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Darvocet (as needed) and magic mouthwash (for mouth sores)

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 8/28/2008 10:14 PM (GMT -6)   
OH NO!! (((((((((( Cheeki ))))))))))

I'm so sorry you have had such a very rough go of it!! Yowsa!! Life can sure take some twists and turns in a hurry!!

I'm glad you are back home and recovering. I hope you will be feeling way better soon. Thanks so much for the update!!

YES! I appreciate each breath that I take and EVERY ability that I have to to ANY little thing on my own !! For sure!! Thanks for the reminder!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/28/2008 10:25 PM (GMT -6)   
That is a lovely post and so gently written.... You're right, we need to ask questions about our disease.  Learn as much as we can. I hope and pray that your recovery from your heart attack goes smoothly.  Thank you for writing what you did.  It's positive and encouraging.  We do need HW.  Glad you're here!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

New Member

Date Joined Jun 2008
Total Posts : 14
   Posted 8/28/2008 11:05 PM (GMT -6)   
    Thanx for your responses............I guess I was just feeling as though I come to the forum........I take in all the info...everyone is so very helpful then I leave the forum and continue on my day...........But not often I mention how wonderful you all have been and how grateful I am to have stumbled across this beautiful blessing of a site. I have had many struggles with my lupus in the past,  a few scares....But this last one was such an eye opener.......Yes I have Lupus.....Yes it can make my life tough at times..........But wow.........Life is so darned short...really needs to be lived as though tomorrow may never come......
   I have been feeling much better mentally........been in a rough flare since the surgery......But I know it will eventually end,  and that things could be much worse..........My husband and kids could be living without a mother and a wife.  I am so very lucky..I have been blessed with a fantastic husband and 6 wonderful children who are so understanding, supportive and helpful.  And I am also so extremely thankful I have found all of you.......and after realizing how much this forum and all of you mean to me........I need to do what I can to give back.  to hopefully someday help someone as much as you have all helped me, to be appriciated as much as I appriciate all of you.  I have never met any of you other then through here......but I feel as though you are all such a big part in my heart......I feel as though I have family in all of you. So once again........Thank you everyone....for truley understaning and really caring about the well being of all our family members right here in our forum...........Encouraging words go so much farther then anyone knows.
God Bless

New Member

Date Joined Jun 2008
Total Posts : 14
   Posted 9/16/2008 8:24 PM (GMT -6)   
Just a real quick update.......Been a long haul thinking it is almost over............ended up with serious infection from surgery, Back into hospital I went. The only good thing about that was they were able to get my Lupus back under control......Home now struggling but making it work..........Glad to have a moment to pop in here and read a few new posts to give me a sense of belonging again:)...Anyway going to keep this short, Just had a little bout of energy so thought I would drop a line and say Hi.

God bless and I hope everyone is doing well

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 9/16/2008 9:14 PM (GMT -6)   
Cheeki, So sorry you had a setback, although a serious infection from major surgery can hardly be described as a setback. I'm glad to hear that they got your lupus back under control and I wonder, you say you're home struggling but making it work. What is going on with you now that you're back at home. Isn't it wonderful to have this place to come to for that sense of belonging. I'm so glad you found this forum. And we're lucky too.

Do let us know, when you have more energy, what's going on with you. I hope your energy comes back as the doctors expect it should.

Sending lots of healing energy your way,

Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 9/17/2008 12:59 AM (GMT -6)   
Hi Cheeki. I'm so sorry you've been having such a terrible time. A kidney removed, MI and it sounds like the mother of bacterial infections. Oh, and lets not forget that little ailment called lupus. I sure hope you improve soon GF. Your post about this forum is very touching. I'm sending you lots of positive energy! (((Hugs))) Love, Butterflake 

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture

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