The bone scan came back perfectly normal...... When my rheumy said that I wanted to cry, and hit something at the same time.
All my blood tests for inflammation, and a bunch of other crap came back normal too..... At least we know it's NOT my lupus. It's very quiet apparently. So that's good.....
What isn't quiet is my FIBRO!!!! I'm in a massive fibro flare up. What I thought was joint pain, is actually the muscles and soft tissue that are surrounding each joint. It's next to impossible to tell the difference between joint and acute muscle pain.
I have never experienced a fibro flare up like this, ever. This beast has 10 heads, with fangs, and spits molten lava. Now I know what the gals in the fibro forum are talking about.... The last 7 years I've had fibro that is mild and really never gave me any issues. Only if I was poked or bumped into something is when I'd feel the pain. This is severe. So much so, that my rheumy wants me to taper down as low as possible on the prednisone to help the fibro not be so bad. I still have to make sure my lupus then doesn't flare up. BAH! The gong show continues.
I do have issues with my feet that are unknown. The pain could be partly fibro, but she thinks there's more to it. The bone scan didn't pick up on anything which leads her to believe it's a ligament/tendon thing. I see a foot specialist on September 9.
She prescribed Tramadol for me to take for the pain. As needed only. I don't want to become addicted. It's working great tonight! I have some relief, finally.
That's all we can do. Isn't all this wonderful?! Actually, I'm so grateful that it didn't turn out to be RA or something even worse..... What a blessing. Fibro can't hurt me, so I'm in a winning situation!
That's the update. Not as exciting or compelling as I thought it would be. But I'm okay and it's just my stupid fibro!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus