The infectious disease doc told me I based on the info she got from Mayo that I will need to take steroids for the rest of my life. I'm assuming it is from pituitary and/or adrenals. I already take synthroid, but I'm not sure that counts. I don't understand why else they would give me steroids every day. I was kind of surprised and didn't think to ask why. She just said because of my test results and my medical history and workup. She said autoimmune disease and other problems.
I'm afraid that my pituitary is not working so then my adrenals are starved and will shrivel. That's what the tests show. My adrenals do respond if I get ACTH, I just don't make it and a bunch of other hormones that are pituitary hormones.
In the appt. I thought they were going to blame my pituitary and adrenals on my rheumies past treatments with steroids. They seemed to keep questioning why I was given them. But later, at my last phone appt. They emphasized that I would definitely need steroids and so they were treating my TB.
Could they be talking about some kind of every day steroid treatment for autoimmune disease? I didn't think docs do that. I thought it was just tapers. It sounded like supplementation to me. Any ideas? I plan to ask, just between weather, money, and my health haven't felt up to scheduling a sooner appt than my next one a few months away.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn