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Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 8/31/2008 12:25 AM (GMT -6)   
I was just wondering if lupus can cause weight gain?  Not meds just the lupus itself.  I know that it seems that over the past 4 yrs now since I've been feeling relly bad I've gained alot of weight.  I know it could be due to less activity, I was just wondering.  I read that you tend to lose weight with flares.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 8/31/2008 8:31 AM (GMT -6)   

I have never heard of Lupus it self causing weight gain but yes the side effects of meds can cause it as you know. Also inflamation can cause water weight gain. Fluids around the organs and joints. But that is only temporary. Join the crowd I put on a pair of jeans this morning and couldn't button them cry .



Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/31/2008 9:31 AM (GMT -6)   
I agree with Carol. I don't think lupus itself causes weight gain, but the symptoms and the meds often lead to weight gain. I also started gaining weight when I got sick, even before I was put on meds. For me I think it was the decrease in activity and my sense of taste and stomach did some weird things where the healthy things I used to eat no longer sounded good to me, so I ended up eating a lot of carbohydrates. Now after several years on prednisone and limited activity I have put on almost 100 extra pounds which I am trying very hard to lose. I know the extra weight is hard on my joints and my heart.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 8/31/2008 2:08 PM (GMT -6)   
The biggest problem with the weight gain is how drs have preconcieved ideas when they see you. Like your prejudged as lazy, depressed ect... That thats the root of your problems.

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 8/31/2008 4:48 PM (GMT -6)   
I think if anything, lupus will cause you to lose weight in the pre-diagnosis stages.  Mostly because so many people are chronically anemic.  Lupus will attack the red blood cells.  This doesn't happen with everybody, but a lot of people have this happen.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Tá mé breá
Regular Member

Date Joined Aug 2008
Total Posts : 140
   Posted 8/31/2008 6:02 PM (GMT -6)   
I agree with ginny, I lost 30 lbs in a few months when I could barely get out of bed. 1 week on prednisone and I have 5 lbs back. oh well. I would rather be fat, happy and feel good! be good to your self!
dx 2006 - autoimmune issues, arthritis, 01/2008 - myelofibrosis. as of 08/08 testing continues signs point to Lupus. (family history - mother RA/Lupus).

symptoms - malar rash, mouth soars (in and out), joint pain, extreme fatigue, migraines, heart pounding on light activity.

rx-cymbalta, propranolol, clonazapam, prednisone, progesterone cream, supplements - b6, b12, flaxseed oil, c.

"All we have to decide, is what to do with the time we are given" ~ Gandalf

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 9/1/2008 10:20 AM (GMT -6)   
In the 3-4 years it took for SOMEONE to finally listen to me and diagnose lupus, I did gain weight. One of the earlier doctors insisted it was depression and started me on an anti-depressant. I forget the name of it, now, but it did cause a weight gain (listed as a side effect). But, honestly, I got so sick that I didn't do anything and that, too, led to a weight gain. Before I got sick, I ran an at-home daycare. I ran after 8 babies/preschoolers for 10 hours a day! SO, my weight stayed down. Then, I got sick. Within a year I had trouble walking! So, yeah, I started putting on the weight. I know everyone will say that you lose weight with lupus, but, for me anyway, the opposite was true!

Hope you feel better.
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 9/1/2008 10:26 AM (GMT -6)   
Domanique, I second what Hippi said: prednisone, it's accompanying increased appetite, inactivity due to feeling bad, depression, and then the cycle begins.
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 9/7/2008 9:47 PM (GMT -6)   
Thanks for all the info.
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