Happy Labor Day?

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Regular Member

Date Joined Jun 2008
Total Posts : 363
   Posted 9/1/2008 2:53 PM (GMT -6)   
Well, I just have to vent a little. smhair   Every year here in Blue Ridge, GA they have a huge Labor Day BBQ to raise money for community charities.  It's lots of fun with really great food, and music, arts and crafts etc.  Well it's sunny and 90 degrees outside, so guess who's suck at home.  All of my friends are there volunteering and my DH is going to play guitar and sing.  I'm so frustrated becuase I know if I went I would end up in bed for the next two days with a splitting headache.  Normally I don't mind being a homebody, but sometimes it would be nice to feel like a part of the rest of the world.  It's so hard to accept that this is the way life is going to be.  Will I ever be a part of Summer activities?  Should I move somewhere with a cooler climate?  What can I do to avoid the horrible headaches I get from the heat?  I have two small boys and I want so much to feel well enough to provide them with lots of outdoor activities, but I just don't know how to do it.  I don't even know why we have this holiday, I never liked work very much and labor (childbirth) was excrutiating.  LOL  I hope everyone elses day is going better then mine.  Sorry about the bad attitude, just feeling a bit left out.  Prayers and blessings to all.


Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.



Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 9/1/2008 3:49 PM (GMT -6)   
I hear you, friend! I am here at home in lovely (haha) Atlanta, cocooned with my A/C going full blast. And the laundry to do, to boot! Yesterday I tried to spend a little time at an outdoor art thingy, and lasted less than 45 minutes....totally bright red, covered in sweat, itchy (as my skin gets more sensitive from the prednisone, the more it reacts to salt), and miserable. Came directly home & into a cold shower, followed by a nap directly in front of the AC vent!

I keep thinking I'll plan better and it won't be so bad --I guess I'm just too lazy, at least so far. I know a cooler of ice and a battery-powered fan are the ingredients of a good old-fashioned A/C unit -- but that doesn't magically appear, does it?

I'm sorry none of your friends thought to volunteer to help you out in getting there and being comfortable. I think the biggest thing lost to this disease is spontaneity. If I want to enjoy any kind of day off, celebration (even just a dinner out), or holiday I have to plan ahead...and get other people involved in the planning. If I remember to start figuring out what I need 2-3 weeks in advance, I can sometimes manage an outing that's comfortable for everyone...everyone gets part of the task...

Hope things look up soon! Maybe after the sun goes down you can join in for a little bit?

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone(was 15mg, now 8mg), Cellcept, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/1/2008 4:16 PM (GMT -6)   
(((((( Jennifer ))))))))

* long sigh *

I hear you sis!! It really is tough. I have a couple of favorite folding chairs (bag chairs) and a portable foot rest that folds up like lawn furniture does. I've also go my on a great portable recliner (Bed Bath and Beyond)

You need to figure out if its the sun or the heat or BOTH. For me its definitely both. I do like Lynnwood suggested and plan to show up after the extreme heat subsides. I'm usually good for a sunset or a campfire . . . ha ha .

I have also seen (on TV) a vest that keeps you cool. I'm not sure if you fill it with ice or keep it in the freezer . . . but you'd need to bring a spare one in a cooler or something. I might look in to that.

I also depend on a huge golf umbrella and even with that, I'm really careful about the reflective nature of the ground around me. Sand and concrete really let the UV bounce back up at you even under an umbrella . . . so I avoid those surfaces. Grass and earth are the best.

I got to attend an outdoor church service yesterday . . . but I arrived way early and planned my spot in the shade. Wore a wide brimmed hat and I did fine . . . but it was at 10 am.

It does our spirits good to figure out ways to be included even if it can only be a brief tine. I hope you get to pop in and enjoy the fun.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Regular Member

Date Joined Jun 2008
Total Posts : 363
   Posted 9/1/2008 5:48 PM (GMT -6)   
Thanks so much for the support!! My DH brought me some food and it was soooo good, it perked me up a little. I laughed at Lynn's comment about cool showers and napping on top of the a/c vent, that's exactly what I did during the move. You guys are the best!! Thanks again.


Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.



Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 9/1/2008 7:22 PM (GMT -6)   
Just wanted to second what everyone is saying. It sucks (can I say that) to miss the many outdoor activities. When we are feeling good, we tend to jump right in the activities and then we pay for it! Every single thing we want to do (except maybe sleeping) requires advance planning and then, of course, the agonizing decision making: is this activity worth what it will do to my body? What will I have to miss out on in the next few days if I enjoy myself, today?
I am afraid I am not much help with solving the problem, but I hope you have a good week!
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac, Ambien CR.
Daily Supplements: Multi-vitamin, Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

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