On another forum, I ran across a beautiful post from a woman whose mother had a chronic illness, and I know that those of you with small children will love reading this. I hope she won't mind my sharing it with you. It's too important a message to not pass along.
"I grew up with a mom that had Crohn’s (another auto immune disease) and she was sick a lot of the time. She was a single mom and I was a single child so we only had each other. I had to deal with a lot starting at the age of five, but I knew that my mom loved me, that we were each other’s strength and was grateful for the things that we could do together. Always talk with your kids and make sure they aren’t keeping things bottled up. Let them know that they can share their fears and frustrations with you and that together you can work something out. Try for special nights like Wednesday movie night where you rent a movie and get special snacks and all curl up together in the bed or a Friday night board game night. Things that you can still do while you’re tired and not feeling too great. I used to read to my mom. Sometimes a story, sometimes a poem I had written or even sometimes an entry in my diary. My mom and I started having trouble when we both tried to keep our emotions in and relied on only ourselves. That’s a scary place to be so communication is definitely key and spending time with your kids will help them to communicate. They will remember all the times you spent with them and even if you weren’t feeling the best they will remember that you tried."
Lupus, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin