Hi Xenia welcome new member

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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 9/3/2008 1:39 PM (GMT -6)   
xenia said...
hi there people,i've bin reading about facial swelling.I myself have bad facial swelling as a result of lupus & rheumatoid arthritis.Some days its worse than others but am always aware of it.I also have butterfly rash on my face.I cope for my kids sake.any1 in a similar position feel free to reply sad I am also on a high dose of steroids & immunosuppressants.
Thank you for responding to my post. I just wanted to put you on your own post so people wouldn't miss ya. Somtims that happens. I'm glad you found this group.  I'm sorry you are having to deal with all of this. But you will get lots of support here.
welcome to the family
Possible scleroderma.  stage 4 COPD,  Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 
 Did you ever know that your my hero?

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/3/2008 9:28 PM (GMT -6)   
Hi xenia and welcome. I'm glad you joined us and I hope to hear more from you.

Carol, thanks for starting a new topic to welcome our new member.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 9/3/2008 10:34 PM (GMT -6)   
Hello Xenia,
Another welcome coming to you!  I hope you find lots of support here. We're a close bunch and we love to support each other. Sometimes knowing that you're not alone will help make coping easier.  we're here for you,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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