I'm sorry to hear your bad news. I do pray that they find no lupus in your lungs, and that if you need a transplant, you get it taken care of sooner rather than later. I completely understand why you would feel down about that--but the good news is that your lung functioning is up to 29%, from 23%. Perhaps in the overall scheme of things, your doctor was less than impressed, but we have to take our victories as they come.
My mother was in a similar situation, so even though I don't know firsthand what you're going through, I can identify with it as a sympathetic observer.
You and your family will be in my prayers.
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex