Newbie needs some advice

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New Member

Date Joined Sep 2008
Total Posts : 5
   Posted 9/3/2008 5:41 PM (GMT -6)   

Good Day to Everyone!!!

I am a 28 year old female. I have been suffering with a red blistery rash (hives i believe) on my legs, bum, arms and stomach. Thought maybe it was an allergic reation to something i touched or ate... doc put me on reactine and predizone (not sure i spelled that right) i found that it helped, but symptoms come back as soon as drugs wear off. Along with that i have other symptoms, extreme tiredness, swelling of feet, hands and ears with red blotchy blisters that are real itcy, sweating ~ more so at nite, headaches ( i wake up and go to sleep with them - tylenol does not work) hair loss, loss of appetite, aching all over ~ stiffness in elbows, knees and hands, shortness of breath ( i am a smoker thought maybe i was getting a cold) and a cough that i can't seem to shake ( i guess you could say like a smokers cough... but different ~ makes no sense) they don't all appear at the same time, some stay with me ( headaches, appetite ) while others come and go.

My first thought that something was wrong was my last pregnancy was horrible - constent headaches, throwing up, not able to eat. Doc said that some pregnancies were like that - figured he knew. I had an emergency c-section, which i will say has not healed all the way yet.... and its been 9 months. Now all these other things within the past 9 months have been appearing. I stumbled upon this forum and once i started reading i realized that some of the symptoms talked about i was experiencing....

I just know that this is not an allergic reaction - these symptoms are nothing like i have ever experienced before. I'm feeling so lost!!!!

Thank you for listening.


Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 9/3/2008 6:23 PM (GMT -6)   

Hey Chevyrain,

I am new here too, and experience some of the same things you are.  I would not have thought to add the cough that started in October of last year, until I read your post. 

I am not as well informed as others are at the forum, but i can listen.  Your symptoms to me sound like Lupus.  and at the very least, maybe your doctor could do the blood tests for you that can indicate Lupus.

Please keep us posted on how things are going for you.  I learn something new everytime i go to this forum to check the posts.

Sometimes it just helps to have a name and reason for the symptoms.  And it really helps a lot to know that we are not alone, that many across the country, around the world probably are going through the same things that we are going through.

Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/3/2008 9:38 PM (GMT -6)   
Hi Chevrayne and welcome. I'm sorry to hear about your health problems and I hope you get some answers soon. One of the first steps in getting an accurate diagnosis is to get a referral or make an appointment with a good rheumatologist who specializes in lupus. Also make sure you make a detailed list of all your symptoms (even ones that might seem small or unrelated). It also helps to take pictures of any rashes or swollen joints in case they aren't there anymore when you do go to the doctor.

If you do have lupus, I have read that sometimes pregnancy or childbirth can trigger the onset of lupus in women. There are some good resources you can click on in my signature and you'll find some good info there.

Hang in there, it can often take a while for docs to figure out what is going on. It;s hard to be in diagnosis limbo, but you are among people here who understand what it is like. Please continue to ask any questions you have. I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 9/3/2008 10:31 PM (GMT -6)   
Hi Chevyrane,
I wanted to add my welcome!  I don't have a lot of other advice to give you.  Hester and Hippi have mentioned some good things.  It can take a long time to get a diagnosis, whatever that might be.  Autoimmunity is very tricky and complicated.  But keep a good list of all your symptoms day to day.  Then you won't forget any of them when you see your doctor!  Take pictures of those rashes too.  Just in case they disappear.  Good to have concrete evidence.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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