Kidney Involvement

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New Member

Date Joined Jun 2008
Total Posts : 18
   Posted 9/4/2008 10:33 AM (GMT -6)   
I know this is a fairly vague question, but I was just curious as to what signs/symptoms any of you have experienced as far as kidney involvement with the lupus. Thanks :-)

Dx- Corrected Tetralogy of Fallot. open-heart surgeries 1982, 1983, 1984, 1985, 1987.
Hypertension, Hyperlipidemia, Anxiety, Horner's Syndrome
Currently playing diagnostic limbo but looks to be Lupus and Dermatomyositis

Meds: Plaquenil, Prednisone, Tramadol, Lipitor, Xanax, Atarax

New Member

Date Joined Aug 2008
Total Posts : 7
   Posted 9/4/2008 11:38 AM (GMT -6)   
When i went through kidney worst symptom was my stomach hurting sooooo badly i had to go to the ER.. then that it when they tested me and said my kidneys were failing. then my kidneys were spilling protein which made my stomach swell which made it hurt and i couldnt breathe... but if your kidneys spill protein you can swell anywhere from your ankles to your arms anywhere the protien can go.. i had to go through a chemo treatment to patch up my kidneys so they wouldnt spill all that protein..
the doctors wanted a quick fix rather then wait for the meds to kick it because that would have taken a couple months and the chemo would work right away becuase i was very sick at that time.
it should have never gotten this bad. i didnt take care of myself like i should have. and took my health for granted. now i know that taking your meds everyday and just having a careful watch on everything that happens with your body should prevent me from ever having kidney failure. and also having a good relationship with your doctors too.
now after going through 6 moths of chemo my lupus is in remission and my kidney function is way better.
i hope this helped =)

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/4/2008 11:42 AM (GMT -6)   
MJ, I had some very mild kidney involvement on and off for about year before my disease was treated more aggressively. From what I experienced and from what I've heard from others who have kidney involvement with lupus is that you usually do not have any pain in your kidneys - that's one reason it's hard to know that your kidneys are involved. For me, I just got really sick and felt worse than usual, especially the fatigue. I felt like I could be dying. Luckily when I went to my pcp she ran all kinds of tests and did a UA which turned up positive for protein. Other signs are swelling in the feet/ankles/legs and foamy or frothy urine. I might have forgotten some things, but these are the main things I remember. Are you concerned that you might have some kidney involvement?
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined Apr 2007
Total Posts : 164
   Posted 9/4/2008 8:06 PM (GMT -6)   
Hi all,
I posted under hives, but after getting back some results I wanted to know if anyone with kidney involvement also had these abnormalities.  I have WBC and RBC in urine, my doc asked if I had signs of a bladder infection (very thankfully) I dont.  My CRP which tests for inflammation is also up again, 5 is the normal mine has gone from 13 to 17 to 41 to46.  I also have elevated WBC in the blood which she said could be due to prednisone.  Any help would be appreciated.  I have been ill for many years first being dxd with seronegative lupus, to fibro, to MS, back to possible lupus.  So I wonder if all these years between first symptoms and now, I have kidney involvement.
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