I am now on a maintenance dose of 5 mg. of pred. and will stay on this as it is the only way I can still work. I am a nursing instructor, and if I don't take pred. I can't walk due to extreme muscle weakness, yes, like the Boston Marathon was just run level of weak.... and I fall. All due to my SLE, which was first suspected to be MS, and then, double whammy, my neuro specialist wonders that I could have a very rare mixed patho of MS/SLE. My type of lupus is CNS, and without a daily dose, was flaring every 3 months, falling 3 times a week, and going from 40/30/20/10 mg tapers every other month. This dose is the minimum that gets me by, and I am always yucky, but some days less malaised than others. High dose prednisone makes me feel healthy, but at what cost? My bone density went down and I doubled in size......... I guess it's all about balance. I drop things alot and have carpel tunnel because of nerve inflammation, not scar tissue. The nerves swell when I flare, not from repetitive strain injury, but the end result is the same. I can't hold on tight, and I drop stuff. I have a wrist brace that helps, too. They are $15 at Walmart and worth it.
ps. due you spin? I mean yarn p.p.s. i am almost a gramma, too, 6 more weeks, Avery.
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.