Do you guys get weepy when you flare?
I don't cry much. I can count on one hand maybe two, the number of times I have cried in my life. so when the rheumy asked me if I had ever cried and had no tears, I did not know how to answer him. Mostly I beat myself up. Looking for a reason to blame myself for the major (to me) flares that I have. If I caused it, then I have control over it, and do not feel so powerless over my life. This isn't realistic, and I am learning to not do this.
All of you seem to know your lupus symptoms by thier medical names, and I don't. I don't even know if I could remember them medically even if I tried. I don't talk much to my family about Lupus either. It is just more stuff to them about Lupus, and Lupus is an old story to them, or so it seems.
When this flare started the middle of April of this year, I was sick. Really sick. and it has only been a little over two months since I asked for plaquenil and got it. And then the blood tests that were so high. and the relief that Lupus diagnoses, (again) and plaquenil brings to me.
i have got to learn to be pertinent. Find some way to describe my symptoms maybe than the one that I use.
In the midst of this being so sick every day, one of my children asked me to babysit for the entire weekend. Denial. I think it is easier for them to deny my illness than to face the Potential future without me in it.
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours