And . . . you nailed it. If you can only do 2 minutes per hour, than for heaven's sake do it. But if you can do nothing but ly in bed and wait for help. . . . than that's all you can do . . . and that's ok!!
This is such good advice. I think I will write a note with these words on it, and put it on my refrigerator, and tell myself in the note that you said so.
I can give this advice to other people, but find it so hard to accept it for myself. When I was working, I always was able to go to work even if I was sick. but this sickness is different than regular sickness.
this is good days for me, since starting plaquenil this time. I don't have to hold onto furniture to get myself to the kitchen. but I still can't do much without causing pain. but compared to April through July of this year, I am in good days.
I think we help each other by telling each other that it is ok. and a little at a time maybe we give our own selves permission to do nothing but lay on the bed or couch if this is all we can do. I wish I had found this forum in 1998. but I didn't even have a computer at the time.
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours