New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Sep 2008
Total Posts : 18
   Posted 9/11/2008 10:13 PM (GMT -6)   
Hello my name is  Alex I have sytemic lupus, diabetes,heart  problems, rhemotiod  arthrites and finally depression. I am 38 years old with to  kids one 17 and the other is 12. my husband is very supportive and  lost at the same time. I found out about 1 year ago that I had lupus it started when I started loosing my hair  (still am by the way) no-one seemed to know  what was going on till they finally drew MORE blood.(I am suprised I still have some) I thought this was going to be way  to much forme to handle physically and emotionally.It is hard to do alot of things that I used to do...I think  the worst part of all this is loosing my hair.I think I can probley handle anything but that is really depressing and I don't have much left to loose.I take ALOT of different meds.I hope that I didn't bother you with my problems I just thought I would let you know alittle about myself. and maybe someone has some advice for some of the things I have going on..Thank you for your time Alex tongue

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 9/12/2008 5:52 AM (GMT -6)   
Dearest Alex, I know you'll find comfort on this forum. You aren't alone. It was extremely difficult to adjust to the new lifestyle lupus dropped on me. Like many here on the forum I had a family, a great job and exercised regularly. I initially developed depression, then fatigue, vertigo, falls, loss of sensation and pain. It took 2 years for a lupus diagnosis and during that time, docs said I my symptoms were somatic (in my head). I was extremely depressed (suicidal) and ate for comfort, telling myself that I'd lose the weight when I felt better. I am still 50 pounds overweight. I'm lucky because I lost all the hair on my body, but still have hair on my head. I take 13 different meds a day. I still take anti-depressants and always will to keep the suicidal beast at bay. So if you're still reading this, please give yourself time to grieve over your lost life. I cried for many months. You really are going through a grieving process. I know telling you about my problems isn't uplifting, but I want you to know that you don't need to apologize for who you are. Being a lupie is tough, but we are here for you. Love, Butterflake    

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea, hypertension, IBS Tx: CellCept, plaquenil, prednisone, lisinopril, actos, lipitor, nexeum, prozac, seroquel, celebrex, actonel
prn: arthritis tylenol, neurontin, promethazine, ambien.  multi vit, C, flaxseed oil, acupuncture

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/12/2008 7:59 AM (GMT -6)   
Welcome Alex !!

Donna is right. We each have to go thru a grieving process and then find the "new me".

For your hair, you can try taking a vitamin called Biotin. It is found in eggs. Eating eggs is really good for your hair too. When you feel prickly places on your scalp, that is your new hair coming in. At first, I thought it was broken off hair . . . but I've come to really look forward to feeling those prickles!!

Glad you found us!! Make sure you check out the links at the end of my signature.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/12/2008 9:29 AM (GMT -6)   
Welcome Alex. I'm so sorry for everything you have been going through. Adjusting to living with lupus can be very hard and like Rosie said, it can be a grieving process. For me, I had to give up a lot of things I loved and it took me a while to find new, less active types of things that I could enjoy.

I'm glad you found this forum - we have a lot of great supportive people here. Ask any questions you have and also know that we are here for you whenever you are going through a rough time.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/


Co-Moderator: Lupus and CFS Forums

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, August 19, 2018 6:33 PM (GMT -6)
There are a total of 2,994,490 posts in 328,138 threads.
View Active Threads

Who's Online
This forum has 161283 registered members. Please welcome our newest member, Depressed mom.
281 Guest(s), 9 Registered Member(s) are currently online.  Details
scifigal2k, mattamx, Michael_T, 3timechamp, Scaredy Cat, Sinmiedo, Girlie, WalkingbyFaith, Jack & Diane