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Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 9/14/2008 3:40 AM (GMT -6)   
I went to the er again last night for right side pain and problems breathing.  They did a chest xray and an ekg and gave me some pain meds and put me back on prednisone, this time for 30 days.  They couldn't find anything on my chest xray and said that I sounded clear, my o2 was fine.  I don't understand what this is.  I just feel like I can't get enough air in.  My side still hurts.  The pain med they gave me I had a really BAD reaction to.  I started feeling nautious and sweating all over, shaking uncontrollably, my legs were jumping like crazy, and I started itching all over.  This reaction happened on our way home from the hospital.  I seem to always have bad reactions to meds another thing I don't understand.  The er dr did said that he wasnts me to get back in to the pulmonary dr asap, cuz he didn't want to see me for 3 mths.  I hate feeling like I can't breathe.  They said I should see my regular dr for my side.  I don't understand how I feel short of breath and have a good o2 level.  Hopefully someone someday will figure it all out.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/14/2008 11:41 AM (GMT -6)   
domanique, I'm sorry to hear about your breathing problems and I really hope one of your docs can figure out what might be causing the problems. I wonder if some of the reaction to the pain meds might have been having them on an empty stomach. I get pretty sick if I don't have food with my pain meds.

I am hoping the ongoing prednisone will help. Prednisone is the med that finally gave me back some decent quality of life. What dose did the ER doc put you one?

I hope you are getting some rest and feeling better. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 9/14/2008 12:46 PM (GMT -6)   
I had the same issue for a while. Extreme shotness of breath, increased heart rate with good 02 sats. I had alot of edema at the time, so I figured that what it was. As it turns out my hemaglobin was very low and was causing the shortness of breath. Did they do blood work? Did they check your o2 saturations after walking you? When I had a blood clot in my lung my sats were normal while resting, but would bottom out with any movement. Please follow up with a good doc. I hope you feel better. It's scarey when you can't breathe! God Bless You, Judy

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 9/14/2008 9:57 PM (GMT -6)   
Hi Dominique,
Judy is right. Measuring o2 levels is sort of one of those indecisive markers.  I was in the ICU last summer, nearly falling into a coma, with hemolitic anemia and my liver shutting down, and yet my blood oxygen was perfect. I'm not sure what makes our blood oxygen go wonky and what doesn't.  It's frustrating though to not have answers.  I can understand that completely.  I hope your answers come soon too.
Rest well,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Regular Member

Date Joined May 2008
Total Posts : 156
   Posted 9/15/2008 12:24 AM (GMT -6)   
The er DR put me on 20mg of prednisone 3x a day for 5 days, then 2x a day for 5 days, and then 1x a day for 5 days.  They never tested my o2 levels while walking.  I was on the bed the entire time.  They did take some blood but I have no idea what for.  I had a bunch of blood work done a few weeks ago at the rhumy and again I'm not sure what all she ran.  It was my first appt. and she was only in the room about 15 minutes.  When I called her in reguards to the side pain I've been having and the breathing issues she said that so far all my tests looked fine and that she didn't believe the breathing or pain was rhumy related.  I'm not sure if that means she doesn't believe I have Lupus or what.  Shes only there 2 days a week so its really hard to get a hold of her.  One of her 1st questions to me was weather I was depressed or not and the fact that maybe its inactivity that is causing my pain.  I am overweight but I have 3 kids to keep up with so its not like I'm just sitting all the time.  I am calling the pulmonary dr tommorrow to get in.  I thought about calling the rhumy again as well, but don't know that I'd get anywhere.  Thanks for the advice though, I'll look into the blood work thing.
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