Posted 9/14/2008 11:38 AM (GMT -6)
I saw my Internal Medicine Specialist last Thursday. This "angel" of a doctor was the person who got my diagnosis really rolling in 2000. It's been 9 years since I last saw her, so the visit was really great!
I wanted to see her because of all the "weird and wonderful" changes that my body has been going through this past 14 months or so. Most importantly, my blood pressure issues. I have uncontrolled hypertension. A year ago, I had perfectly normal bp. Why the sudden change??
We did talk about my medication allergy and how many of these changes have happened since that event. She's not convinced that the allergy is the only reason for these changes I'm having.
We went through a lot of my symptoms, and what tweeked her interest was when she listened to my heart. I have abnormal heart sounds. Who knew! LOL. This, combined with my inability to handle heat (or even moderate temperatures), tingling in my hands, fingers, feet and toes (a nerve conduction test came back normal), headaches, nausea (very recent), anxiety, sweating, racing heart beat, have led her to test me for a very rare adrenal gland tumor condition called a Pheochromocytoma. A tumor on the adrenal glands will cause the adrenals to secrete excessive amounts of noradrenaline, epinephrine, etc. All the "fight and flight hormones". If I do have a tumor it would have to be surgically removed (laporoscopic). I am having an urgent Echocardiogram done this Wednesday to look at my irregular heart sounds.
I'm doing a 24 hour urine test to see if I have an excess of the hormone Metanephrine. This will give us the answers. I do the test this coming week. Another issue to possibly deal with. But it sure would answer some of my nagging issues and questions. I'm thinking if there is a tumor, they might as well get it out when I'm having my hysterectomy in November. Both operations are done laporoscopically.
On a different topic, but sort of related, I had to go to the ER via ambulance on Friday. I was having stroke symptoms..... Very much like the symptoms I had when I had my stroke in 2002. I didn't have a stroke, and everything came back normal. ER doc isn't sure what I was experiencing. He was VERY interested in the "adrenal tumor" test I was going to take. I have the feeling, I experienced a massive anxiety attack that mimicked a stroke. If that's the case, I'm not impressed with my body right now! An anxiety attack of that severity is NOT welcome in my life!!! LOL.
Thought it makes for an interesting topic to read about, especially if any of you have uncontrolled hypertension and the other symptoms I mentioned.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus