I journal now. I try to write every week, but is you are having daily issues, just jot something down. it gives you some solid ground to hold onto.
ever since I read that thing in Lupus resources, telling us to keep a log of our symptoms, I have done this. evey day I write down what I am feeing that day. and now I will add what I am thinking, how I feel emotionally an intellectually.
I just assumed the sleeplessness was part of my depression. all this time, years, I have believed this to be true. It is good to know that it isn't. easier to accept for me. there is always that chance that Lupus will go into remission, and maybe this part of my being would be gone too. and maybe it won't go into remission, and I will stay the same as I am now. but even that is easier to accept than it all being in my head.
The deep dark hole for me comes after the period of being unable to sleep. And at those times, I just tell myself to hold on for one more minute, one more day, that the dark hole will not last forever, it will go away, and when it does I will be able to think well again, even though I won't be able to sleep.
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours