I thought it was just me sometimes I have to double think about what I was about to do or say..If I didn't sepreate my pills in a pill box or I forget what I havev taken. .And i am only 38.Today my body feels like I am 88..At work it seems like I am all alone I hurt and people look at me like I am faking it makes me feel like screaming. One day maybe I will wake up and feel like I did when Iwas in my 17's LOL...I also have the sleeping problem the doc gave me lunesta but I am having bad dreams since I started takening them so I guess I can't win for loosing.Didn't mean to just dump everything on ya;ll but sometimes it does make it alot easier to vent may not make it go away but it helps THANKS ALOT...
I have started to put my meds in my pill box too. But I think I left my arthrotec out. arthrotec is the only thing I take for pain, and when I don't take the pain is more intense. so i think i forgot it. will correct it today. I was forgetting to take mine. or I took it but couldn't remember it. I was never sure. so the pill box is definitely needed now. I tried to stay away from it I think because it was my mama's pill box when I took care of her. and using it was admitting that I was sick I guess. not sure.
I have had family look at me the way your coworkers do, and it hurts. When I am so weak and sick I can hardly get up off the couch and make it to the kitchen is a time that I should not be asked to babysit. I will have to learn to be more assertive I think with my family. They mean well i think, but what they say or do doesn't help. they wish to deny my illness. It they can deny it, then it will not be real to them. Denial I think is better for them. they are off the hook because they do not believe it is real. and when the other doctors did not accept lupus, it gave them more reason to deny it even more.
Ahhh me too. I remember I was so strong and full of energy when I was younger. i took it so much for granted. Life gives us a bitter wine to drink sometimes, and we have no choice but to drink it and hope for the best. I do believe that the things that have come my way in this life, has made me a better person than I would have been, had I not had these things happen to me.
Please do dump everything on me, any time you feel like you can share it. To know your story is also a way to know that I am not aone. And this disease is so much easier to deal with, if I am not alone, that somebody believes me and knows what is happening to me.
Thank you for sharing all the things that you did with me. I feel honored that you share some of your deepest pain and feelings.
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours