I want to welcome you to the forum as well. Im so sorry this is happening to your little girl. Very traumatic for everyone in the family....
I wondered the exact same thing. Why is she on prednisone if there aren't any other symptoms or problems? My first reaction was - is the rheumy not telling you everything that is going on? Is there some other organ or blood involvement that they forgot to mention to you? I would not hesitate for one more second. Call the rheumy and ask. You have to be your daughter's second doctor. She's not old enough to ask these important questions and be proactive. Make the call, ask to have all her blood work and results faxed or emailed to you. Rosie mentioned that already, but it's really important.
I have the anti ds-DNA. I've only had one kidney infection and maybe 2 or 3 small bladder infections this entire decade. My kidneys work really well, and have never been an issue. In fact, of all my organs, my kidneys seem to be the troopers!! So don't over react to this blood test result. If the problems arise, then deal with them at that time. If the problems aren't there, don't worry about it. Okay! ((((hugs)))
Rosie's list of suggestions is perfect. (as always ). I don't have much more to add to what she has mentioned. Just find out what the prednisone is for. That's a huge dose for someone with no organ or blood involvement. Even 20mg every other day is a lot.
Keep us posted okay,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus