It 'may' be a very appropriate dose. But we don't know 'why' he's giving it. He may have been trying to interrupt a potential flare. He may have seen some numbers in some blood work that indicated a progression in some organ. But it doesn't sound like he did.
Suggestion: Keep a copy of EVERY lab report. You have a right to a copy of each test result and each x-ray, scan, and interpretation of the scans, biopsy reports etc. Right now you are early enough in the game to go back and collect them. Keep a file with all these reports. Even the negative results will be important because if you end up seeing several different specialists, you will have your folder handy to show the progression of the disease. This is extremely helpful to the doctors . . . and I'm very sorry to have to share this . . . but it is often very difficult to get this paperwork later. Doctors are, in general, very lax about
getting this info copied and shared. You will save her from repeated testing, time waiting for results and you will move forward w/o so much confusion, if you keep all this paperwork handy.
It will become quite a file. But you can start a new one each year and then eventually carry them in an accordion folder. You might feel silly carrying along all this 'stuff' . . . . but do take it to EACH appointment because you never know when you will need to refer to it.
Another suggestion: for your sanity in dealing with insurance and payment to doctors: Pick up a little check-book sized yearly calendar and use it ONLY for your daughter's medical appointments. Jot down every appointment, mark every date that you do bloodwork, mark the date you start each med and the dates you taper. It will become a great tool because you will lose your mind trying to piece it all together. The bills sometimes come in months after the appointments and it all becomes one large blur. This little book will also come in handy during your doctor visits because you can readily see when she started meds and when she had certain tests etc.
Also start keeping a business card from each doctor. I keep a little wallet insert with the calendar that has all the doc cards in it. It helps keep you from becoming overwhelmed trying to refer to these doctors next year when you are talking to yet another doc. You will find a way to get really organized with this info.
Again . . . I'm NOT saying that she shouldn't be taking the prednisone. I'm just wondering why they are giving it. We are always weighing out the benefit vs. risk and so we ask the doctor: Why am I taking this med? What is the benefit? How long will I be taking it? What if I don't take it? Are there any alternatives?
Hang in there Melissa. I know this can all be overwhelming. But you are doing a great job looking into all your options. Make sure and post any questions because the members here are extremely helpful.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator