We really understand what you're going through with this. I have had doctors withhold information too and it only makes my situation worse when I find out that they really should have told me everything. I agree with you. I don't want to find out on the internet what my doctor is looking for or suspecting. I want to hear it from them. I can appreciate Rosie's wisdom in saying that they don't want to induce any unneeded worry. I guess there's two sides aren't there! Maybe try to give your Hemo a chance. It's a lot of work trying to find a new doctor. We need to preserve our precious energy for other things.
I have resorted to being very upfront with my doctors. I have told them not to hide things from me. They respect that. Maybe have a heart to heart with your Hemotologist and let him know you want to be in on everything, 100%.
I hope this helps!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus