Many of us here may have been to that same dark place, wondering if we even want to go on even for one more day. i know I have been there many times. I seem to do things in cycles, and at least once a month I know I am going to go to that dark place again, and all I have to do is hold on for one more day, one more minute, and it will change. Lupus doesn't change, how I respond to it changes. Most of the time I am committed to not letting Lupus defeat me, but sometimes that will power just does not exist.
Talk to us when you are in the dark places if you can. I know how hard it can be to write to other people during those dark times, but it seems here at this forum, is a safe place to vent feelings.
I can't know what it is like to be your age and sick with Lupus. It didn't get really bad for me until I was older. Like others here I believe that Lupus made me sick often, and I just did not know what it was. Thanks to many good changes lupus is now easier to recognise and diagnose.
Take care Superwoman and speak when you feel you can share. there are others on this list that are young I think, or they are the parents of young people suffering from Lupus.
APS, which caused me to have a stroke in 2002.
Ginny could you tell me what APS is? you had a stroke the same year that I did.;)
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours