Hubby 'knows' that I am doing all my energy will allow. He also will help me pull back when I am over-doing. In my case (as with lots of us) I tend to do too much . . . and he helps me by saying things like "don't you think you've done enough for one day?" or "be careful . . . you'll be paying for that tomorrow"
He does things that really zap me physically too . . . or at least he is understanding when those things aren't done.
He encourages me to continue medical treatment even though I go on strike occasionally because it is SO DARNED EXPENSIVE.
If I need him to come with me to a Dr. appointment, he will come with me.
Things that are NOT supportive . . . are when people try to help by saying things like: "more exercise will make you stronger" "my aunt had lupus and she still held down a full time job" "if you have crohn's you shouldn't eat _______ "
Gosh . . . this could be a really long post. I'll leave room for others to share.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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