Hi Hester, I don't get much family support. Most of the support I get is from here and I am SO greatful for it. I'm glad others are getting help though.
I don't get much support either Okie. When I had bypass surery my entire family was there, and the same thing when I had the heart attack, and vascular surgery. but lupus? they do not wish to hear it. the grandchildren do, but not my children. I talk to the grandkids about it so they will know that it is me, not them, that kee[s them away from my house on weekends.
I was first diagnosed with Lupus in 1996. I researched everything that I could on it. no computer then. the other day I sent my oldest daughter an email about this latest flare and she acted as if she didn't know what I was talking about. Asked when treatment was going to start and told me that she did not know that much about Lupus. 12 years I have had lupus according to my old doctor, and she didn't know anything about it.
I wanted to know what kind of support people got from thier families, and now I know. I am glad too that you get this support, and it really is good support, real support. But like Okie, here at this place is where I get the support I need. Even people that I thought were friends are simply not interested.
But everything to me is a teacher, and I think I have learned a great lesson with this most recent flare, and I appreciate the opportunity. My neighbor down the street cuts my grass for me, and I have a big yard to cut. This is support isn't it? I would have to give my house up if he did not do this for me.
thank you for your responses
Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin daily, multivitamin daily, Arthrotec 50mg twice daily, Meclazine 25 mg, as needed 4x daily, Hydoxychloroquine (plaquinil) 200mg twice a day, Metoclopomide 10 mg, 4x daily, Doxepin 50 mg one cap 4x day, Metoprolol 100 mg daily, Levothyroxine (synthroid) 50 daily, Amlodipine 5mg daily, Crestor 10 mg one tab daily, Lisinopril 40 mg, one tab daily, Omeprazole (prilosec) 40 mg daily, Plavix 75mg daily, promethazine 25mg x4 daily, Restasis one drop in each eye every 12 hours