Posted 9/28/2008 7:35 AM (GMT -7)
Rheumys treat AI diseases not just lupus. You need to find one who is experienced in AI diseases and start there. Many rheumys focus on arthritis and do not see a lot of lupus or other AI patients.
If you live near a large university hospital or clinic that might be a good place to go as they will bring in whatever specialists are needed.
Places like Mayos, Cleveland Clinic, Northwestern U., Johns Hopkins are examples of these. I go to Northwestern and the rheumy brought in several specialists to confirm the diagnosis and make sure that I did not have any serious side effects. My local doctors had already done some of that but they were more thorough and systematic at Northwestern. I made sure they had all my medical records before going there so they could give me the best possible evaluation and that we would not go over grounds and tests already done. I think I submitted 80+ pages of records and test results before the first visit.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it." Helen Keller