Help - Recurring UTI like symptoms - What is it?

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New Member

Date Joined Sep 2008
Total Posts : 2
   Posted 9/25/2008 3:36 AM (GMT -6)   
I have had Lupus for 6 years.  It has been aggressive.  Now I am experiencing UTIs or something like a UTI.  I am miserable for a few hours.  By the time I get a doctor's appointment, the symptoms are gone only to recur within a week or two.  I have had a lot of major organ involvement with my lupus but I am new to kidney involvement.
Any help on what this might be?  Do I need to get in to see my Rheumy?

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/25/2008 10:00 AM (GMT -6)   
Hi oklupie and welcome. I'm not sure what might be causing your symptoms, but it would be good to let your rheumy know, especially since you have had organ involvement. Also, you could maybe see a urologist to see if a specialist can help figure out what is going on.

I'm glad you found our forum - we have a great group of supportive people here.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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New Member

Date Joined Sep 2008
Total Posts : 2
   Posted 9/25/2008 12:48 PM (GMT -6)   

Thanks for the reply.  I have a call in to my Internist right now.  I hope to get relief right now but I will probably contact my rheumy to follow up on why I keep having them.

I was happy to find the forum.  I had another forum I followed and it is no longer there.  I know how important the information and support from others is!

My lupus started with a stroke.  Since then I have been on Coumadin to control the clotting.  I have had several rounds of cytoxin/solumedrol.  I have been doing well for the last 6 months.  I am not on prednisone at all right now.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/25/2008 1:06 PM (GMT -6)   
Hi oklupie,

Welcome to the forum. I'm sorry your previous forum was discontinued. That must be a real loss. But, glad you found us.

I don't know much about the kidney involvement . . . but some of the others do. YES! You will want to keep telling your doctors about your symptoms until they get it figured out. Just keep on being a squeaky wheel. Your rheumy may have more interest/experience with the lupus-kidney issues.

I just wanted to welcome you to the forum.


In His Grip

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Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 9/25/2008 10:31 PM (GMT -6)   
hi oklupie, I've had some what I can only discribe as weird things happen that felt like uti's since I got sick. Most of them have finally disappeared with plaquenil treatment. Occassionally I wwould really have a UTI but most of the time it was just the burning pain and symptoms of UTI but the tests were neg. I never did figure out what caused it but I havn't had one in about 18 months. Like the others said yes anytime a new symptom appears you need to let your doctor know. Oh I know this might sound weird but I have what is called a tipped bladder. I would have to go to the bathroom but then I would just set here a pittle a little. My doctor suggested that I move side to side and front to back while I was on the pot. and it would help to remove the rest. It did seem to work. I don't know if that was causing irritation from not emptying my bladder but heck if it works it works. I just thought you might give it a try if that is an issue for you.

welcome to the group!
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