Posted 9/26/2008 5:12 PM (GMT -6)
Welcome to the forum! You might not be in a lupus flare!!! You do have fibro, and it's difficult to figure out which one is flaring, right?!
I was having what I thought was joint pain. All over my body. I went up on my prednisone and only felt worse, much worse. the pain was unbearable. We did a bone scan and some blood tests, and it turned out that my joints were beautiful and perfect, and I had NO inflammation. My lupus is dead quiet.
The culprit, was my Fibromyalgia. It wasn't joint pain, but muscle, tendon and ligament pain that surrounded each joint. Classic Fibro.
If going up on your prednisone isn't helping the pain, then it really isn't likely a lupus issue. If you're feeling the pain or it's getting worse on a higher dose of prednisone, you and your rheumy should consider that it is likely fibro. Prednisone and fibro don't mix at all. Like oil and water.
This is just a thought. Might want to run the possibility past your rheumy!
Let us know okay!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, Tramacet, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus