Posted 9/27/2008 8:31 PM (GMT -6)
Krista, this is a wonderful place. Sometime when I am feeling better I may interact more again. I had my son in May caught a virus in July and am now in a tailspin health wise. I spent around 15 years being told it was all in my head but when I found the right doctor things moved fast. I really hope your doctor will find out what is wrong ASAP and send you to a good rheumy if you need one. Mine has saved my life litterally several times now and I only found her in 2005.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007,
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements

Posted 9/27/2008 8:46 PM (GMT -6)
Hi Krista,

I suppose most of us have been accused of being hypochondriacs prior to being diagnosed, and some even afterwards. Some families are more supportive than others. A couple of years ago someone started a thread here about lupus fatigue and we all piped up and wrote a lot about the way we felt and the difference between normal fatigue and what happens to us lupies. I was having trouble getting across to my hubby what I was dealing with so I printed off that thread, and it was pages. After he read it he felt awful that he had not shown me more support than he had. I think that the post that really got to him was the one that said "my fatigue is so severe that if I drop a pencil on the floor, I might stare at it for 30 minutes before I get up the energy to reach down and pick it up. That's exactly where I was at the time, but he needed to be painted a better picture than I was able to paint for him. (I was probably too tired to try to explain it & that's no kidding).

I also know that some folks thought I was depressed but didn't mention it to me at the time.

The Spoon Theory is a worth printing off and showing to your DH. Let's see if I can hook you up:

butyoudontlooksick.com/​the_​spoon_​theory.

If you're tired, the best thing you can do for your body is rest. Don't let guilt or worry interfere with what your body needs. But I know just how hard this is because I've been there. You'll start second guessing yourself and wondering if they're right, especially because these AI diseases are so hard to diagnose, but hang in there. You'll probably feel better after spending some time here and getting to know the folks on this forum. Our stories are all so similar.

I had a childhood similar to yours and my rheumy has told me that she thinks I've had lupus all my life (and I'm 59) but my symptoms were vague and no one really listened to me. I was only dx'd three years ago after my worst flare. So I urge you to listen to your body and be kind to yourself. Others will follow if you remain constant and try to keep your mood steady and positive. I get much more help and support when I act positive than when I start to complain. I'm fortunate though, because prednisone doesn't affect my moods.

I'm glad you found the forum & look forward to getting to know you better.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, cellcept, plaquenil, celebrex, neurontin, synthroid, triamterene, ultram, actonel, tri-est, imitrex, cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

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